Metadata Schema of Common Data Elements for Traumatic Brain Injury
Visakh Muraleedharan, INCF
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Metadata Schema of Common Data Elements for Traumatic Brain Injury working group aims to develop a metadata schema for federated data analysis on Traumatic Brain Injury (TBI) datasets through the Medical Informatics Platform (MIP). It is based on data elements from NINDS CDE catalog.
The metadata schema has the following concept roots:
- Demographics - Demographic information
- Neurological assessment - Glasgow Coma Scale and pupil reactivity scores
- Imaging - Structured reporting on imaging data including cisternal compression, epidural hematoma, midline shift, marshall classification
- Second insults - Hypoxic and hypotensive episodes
- Outcomes - Glasgow Outcome Scale Extended score including mortality
- Laboratory tests - Values of glucose and hemoglobin level
This working group of meets virtually at times compatible with normal business hours in the Central European Time Zone.
Visakh Muraleedharan, INCF
Stefano Finazzi, Istituto di Ricerche Farmacologiche Mario Negri
Pradeep George, INCF
Guido Bertolini, Istituto di Ricerche Farmacologiche Mario Negri
Abu-Nawwas Laith, HBP
The schema aims to abstract the variables in CENTER-TBI (stored in International Neuroinformatics Coordinating Facility (INCF), Karolinska Institute, Stockholm, Sweden, https://www.center-tbi.eu) and CREACTIVE (stored in the Mario Negri Institute for Pharmacological Research Bergamo, Italy, http://creactive.marionegri.it) studies. The current version of the data model focuses on the variables required for IMPACT prognostic calculations for predicting 6 month outcome in adult patients with moderate to severe head injury.
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Metadata Schema of Common Data Elements for Traumatic Brain Injury working group has delivered the following
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Data model with variables required for IMPACT prognostic calculations for predicting 6 month outcome in adult patients with moderate to severe head injury